关键词: 互联网技术, 长程管理模式, 难治性癫痫, 儿童

Abstract: Objective To explore the application effect of long-term management mode based on Internet technology in children with intractable epilepsy. Methods From February 2019 to April 2020, a total of 81 children with intractable epilepsy were enrolled in this study, and were randomly divided into study group (n=41) and control group (n=40).Long-term management mode based on Internet technology was implemented for the study group, whilethe control group was given routine management for one year. The compliance behavior, seizure frequency during the management period and quality of life before and after management were compared between the two groups. Results There were significant differences in the distribution of compliance behaviors of diet, medication, follow-up and emotional management during the management period between the two groups (Z=7.400, 4.830, 5.014, 5.694, P<0.05). The complete compliance rates of diet, medication, follow-up and emotional management during the management period in the study group were 82.93%, 87.80%, 80.49% and 75.61%, significantly higher than those of 55.00%, 67.50%, 57.50% and 50.00% in the control group (χ²=7.125, 4.761, 4.889, 5.420, P＜0.05). The number of epileptic seizures during the management period in the study group was (16.83±2.59) times/year, lower than that of (25.35±4.74) times/year in the control group (t=10.072, P＜0.05). After management, the scores of quality of life in terms of fear of attack, experience, emotion and social function of the two groups were higher than those before management (P＜0.05), which were higher in the study group than those in the control group (t=9.453, 8.792, 7.080, 9.558, P＜0.05). Conclusion The application of long-term management mode based on Internet technology for children with intractable epilepsy can improve their compliance behavior, control seizures, and improve their quality of life.

Key words: Internet technology, long-term management mode, intractable epilepsy, children