Abstract: 【Objective】 To explore the impact of asthmatic children′s attendants and family, and give theoretic basics of clinical treatment and health education. 【Methods】 Asthmatic Children′s main attendants completed the PedsQLTM family Impact Module. Analysis of covariance analysis was used to analyze parents′ QOL of asthmatic children of different conditions, course, or economic situation. 【Results】 The score of anxiety dimension was the lest in parents′ quality of life scores which was 70; the score of daily household activities was the lest in family function scores which was 66.67. More than 60% of respondents indicated a certain degree of impact was exist at asthmatic children's parents work and family life. No significant difference of family impact was found in different disease and course of disease(P>0.05). The difference of family impact of different economic situation with sick children was found(P<0.05). 【Conclusions】 A certain degree of impact is exist at asthmatic children′s attendants and family. Attention should be paid to psychological help and support of parents when curing asthmatic children, combine with conditions to do interpretation well, reduce the psychological burden of parents, establish confidence with the treatment, effectively control asthma conditions, ultimately improve the life's quality of children and their parents.

Key words: bronchial asthmatic children, quality of life, family influence of disease, disease burden

摘要： 【目的】 探索哮喘儿童对其主要照顾者及其家庭的影响,为临床干预和健康教育提供理论依据。 【方法】 运用儿童生存质量量表体系(PedsQLTM)的家庭影响模块对哮喘儿童主要照顾者进行问卷调查,运用协方差分析方法分析不同病情、不同病程、不同家庭经济状况的患病儿童对家庭主要照顾者的生存质量和家庭功能得分的影响。 【结果】 父母生存质量评分中以忧虑维度得分最低,为70分;家庭功能评分中以家庭日常活动得分最低,为66.67分。60%以上的被调查者均表示哮喘儿童对父母的工作和家庭日常生活都带来一定程度的影响。不同病情、病程患儿对家庭的影响差异无统计学意义(P＞0.05),不同家庭经济状况患儿对家庭影响差异有统计学意义(P＜0.05)。 【结论】 哮喘儿童对其主要照顾者和家庭都带来一定程度的影响。在对哮喘儿童进行治疗时,应重视对家长的心理帮助与支持,结合病情作好解释工作,减轻家长心理负担,树立信心配合治疗,使哮喘病情得到有效的控制,最终提高患儿及其父母的生存质量。

关键词: 支气管哮喘儿童, 生存质量, 疾病家庭影响, 疾病负担