Study the impact of asthmatic children′s attendants and family
- ZHANG Ying-fen1, HAO Yuan-tao2, FENG Li-fen2, CHEN Ruo-qing3
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Abstract
【Objective】 To explore the impact of asthmatic children′s attendants and family, and give theoretic basics of clinical treatment and health education. 【Methods】 Asthmatic Children′s main attendants completed the PedsQLTM family Impact Module. Analysis of covariance analysis was used to analyze parents′ QOL of asthmatic children of different conditions, course, or economic situation. 【Results】 The score of anxiety dimension was the lest in parents′ quality of life scores which was 70; the score of daily household activities was the lest in family function scores which was 66.67. More than 60% of respondents indicated a certain degree of impact was exist at asthmatic children's parents work and family life. No significant difference of family impact was found in different disease and course of disease(P>0.05). The difference of family impact of different economic situation with sick children was found(P<0.05). 【Conclusions】 A certain degree of impact is exist at asthmatic children′s attendants and family. Attention should be paid to psychological help and support of parents when curing asthmatic children, combine with conditions to do interpretation well, reduce the psychological burden of parents, establish confidence with the treatment, effectively control asthma conditions, ultimately improve the life's quality of children and their parents.
Key words
bronchial asthmatic children / quality of life / family influence of disease / disease burden
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References
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[2] 张欣,陈京立.慢性病患儿对家庭的影响及护理干预[J].中华护理杂志,2006,41(8):749-751.
[3] Ana CS, Saul MP, Isabela AP, et al.The Pediatric Quality of Life InventoryTM (PedsQLTM) family impact module: reliability and validity of the Brazilian version[J]. Health and Quality of Life Outcomes, 2008, 6:35-39.
[4] 全国儿科哮喘防治协作组.儿童哮喘防治常规(试行) [J] .中华儿科杂志, 1998, 36(12): 747-750.
[5] Varni JW,Seid M,Knight TS,et al.The PedsQLTM4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making [J].Journal of Behavioral Medicine,2002,25:175-193.
[6] Varni JW, Sherman SA, Burwinkle TM, et al. The PedsQLTM Family Impact Module: preliminary reliability and validity[J].Health and Quality of Life Outcomes, 2004, 2:55-59.
[7] Chen RQ, Hao YT, Feng LF,et al. The Chinese version of the Pediatric Quality of Life InventoryTM (PedsQLTM) Family Impact Module: cross-cultural adaptation and psychometric evaluation[J].Health and Quality of Life Outcomes,2011,9:16-19.
[8] Pillow DR, Zautra AJ, Sandler I. Major life events and minor stressors:identifying mediational links in the stress process[J]. J Pers Soc Psychol(UNITED STATES), 1996,70(2):381-394.
[9] 李慧,李新兰,高文凤.哮喘患儿父母心理健康状况的比较研究[J].中国行为医学科学,2003,12(4):451-455.
[10] 陈淑芬.家庭功能分析的理论体系简介-家庭功能分析的相关概念[J].中国全科医学, 2006, 9(2): 167-169.
[11] Thompson SJ, Auslander WF, White NH. Comparison of single-mother and two-parent families on metabolic control
of children with diabetes[J]. Diabetes Care, 2001, 24(2):234-238.
[2] 张欣,陈京立.慢性病患儿对家庭的影响及护理干预[J].中华护理杂志,2006,41(8):749-751.
[3] Ana CS, Saul MP, Isabela AP, et al.The Pediatric Quality of Life InventoryTM (PedsQLTM) family impact module: reliability and validity of the Brazilian version[J]. Health and Quality of Life Outcomes, 2008, 6:35-39.
[4] 全国儿科哮喘防治协作组.儿童哮喘防治常规(试行) [J] .中华儿科杂志, 1998, 36(12): 747-750.
[5] Varni JW,Seid M,Knight TS,et al.The PedsQLTM4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making [J].Journal of Behavioral Medicine,2002,25:175-193.
[6] Varni JW, Sherman SA, Burwinkle TM, et al. The PedsQLTM Family Impact Module: preliminary reliability and validity[J].Health and Quality of Life Outcomes, 2004, 2:55-59.
[7] Chen RQ, Hao YT, Feng LF,et al. The Chinese version of the Pediatric Quality of Life InventoryTM (PedsQLTM) Family Impact Module: cross-cultural adaptation and psychometric evaluation[J].Health and Quality of Life Outcomes,2011,9:16-19.
[8] Pillow DR, Zautra AJ, Sandler I. Major life events and minor stressors:identifying mediational links in the stress process[J]. J Pers Soc Psychol(UNITED STATES), 1996,70(2):381-394.
[9] 李慧,李新兰,高文凤.哮喘患儿父母心理健康状况的比较研究[J].中国行为医学科学,2003,12(4):451-455.
[10] 陈淑芬.家庭功能分析的理论体系简介-家庭功能分析的相关概念[J].中国全科医学, 2006, 9(2): 167-169.
[11] Thompson SJ, Auslander WF, White NH. Comparison of single-mother and two-parent families on metabolic control
of children with diabetes[J]. Diabetes Care, 2001, 24(2):234-238.
