Abstract: Objective To understand the status of fathers′ participation in parenting in children with type 1 diabetes,and analyze the correlation between the awareness and degree of father′s participation in parenting with the life quality of children. Methods During september and december in 2017,a total of 35 children with type 1 diabetes and their fathers were recruited from a follow-up group of children with type 1 diabetes in grade Ⅲ-a hospital in Fujian province by convenience sampling method.The Iventory of Father Involvement and Diabetes Specific Quality of Life Scale were used. Results The total score of father′s participation in parenting was 146.09±19.46.The sorting of each dimension′s ratio was encouragement and praise, support and planning, discipline and restraint, and daily care from high to low.The total score of diabetes specific quality of life was 61.28±17.42.The sorting of each dimension′s ratio was psychology,society,physiology,therapy from high to low.Univariate analysis showed that the score of father′s support and planning in excellent academic performance was higher than score of average academic performance(F=3.667,P<0.05).The total scores(t=-3.102) and the scores of encouragement and praise(t=-3.861),support and planning of father′s participation in parenting(t=-23.049) were lower than those of the norm (n=745),but the scores of governance and constraints (t=7.150) were higher than those of the norm (n=745)(P<0.05).There was no correlation between the father′s participation in parenting and the children′s quality of life (P>0.05). Conclusion The awareness and degree of father′s participation in parenting about children with type 1 diabetes is better, especially in encouraging and praise and support and planning, but the level of participation in daily care needs to be further strengthened,and avoiding excessive restraint meanwhile.

Key words: diabetes,type 1, quality of life, fathers′ participation in parenting

摘要： 目的 了解1型糖尿病患儿父亲参与教养的现状,分析父亲参与教养意识和程度与患儿生存质量的相关性。方法 2017年9-12月采用便利抽样方法,应用父亲参与教养量表和糖尿病患者生存质量特异性量表,对福建省某三级甲等医院1型糖尿病患儿随访群中的35个患儿及其父亲进行调查。结果 父亲参与教养总得分为(146.09±19.46)分,各维度得分比值从高到低依次为鼓励与表扬、支持与规划、管教与约束和日常照顾;1型糖尿病患儿生存质量总得分为(61.28±17.42)分,各维度得分/条目的比值从高到低依次为心理维度、社会维度、生理维度和治疗维度;单因素分析显示患儿学习成绩优秀组的父亲支持与规划得分高于成绩一般组,差异有统计学意义(F=3.667,P<0.05);与常模(n=745)比较,父亲参与教养总分(t=-3.102)、鼓励与表扬(t=-3.861)、支持与规划(t=-23.049)的得分低于常模,管教与约束得分高于常模(t=7.150),差异有统计学意义(P<0.05)。父亲参与教养总分及各维度得分与患儿生存质量总分及各维度得分均无相关 (P>0.05)。结论 父亲总体参与1型糖尿病患儿教养的意识和程度较好,尤其是在鼓励表扬与支持规划方面,但在日常照顾的参与教养程度还需进一步加强,避免过度约束。

关键词: 1型糖尿病, 生存质量, 父亲参与教养