中国儿童保健杂志 ›› 2013, Vol. 21 ›› Issue (4): 433-435.

• 经验交流 • 上一篇    下一篇

孤独症儿童家长生存质量的研究

刘振寰1,谢巧玲2,张勇3   

  1. 1 广州中医药大学附属南海妇产儿童医院,广东 佛山 528200;
    2 广州中医药大学研究生院,广东 广州 510405;
    3 广州中医药大学,广东 广州 510405
  • 收稿日期:2012-08-28 发布日期:2013-04-06 出版日期:2013-04-06
  • 作者简介:刘振寰(1958-),男,教授,博士研究生导师,主要研究方向为小儿神经康复的临床研究。
  • 基金资助:
    广东省科技厅广东省社会发展领域科技计划项目(73122)

Effects of life quality on autistic disorder children's parents.

LIU Zhen-huan1,XIE Qiao-ling2,ZHANG Yong3.   

  1. 1 Affiliated Nanhai Maternity Children's Hospital of Guangzhou University of Chinese Medicine,Foshan,Guangdong 528200,China;
    2 Graduate College,Guangzhou University of Chinese Medicine,Guangzhou,Guangdong 510405,China;
    3 Guangzhou University of Chinese Medicine,Guangzhou,Guangdong 510405,China
  • Received:2012-08-28 Online:2013-04-06 Published:2013-04-06

摘要: 目的 分析孤独症患儿对其父母生存质量的影响,为有关机构展开工作提供参考依据。方法 采用普适性生存质量测定量表(SF-36),对90例孤独症患儿父母及120例正常儿童的父母进行评定。结果 1)孤独症组父母的生存质量总分及各领域评分均低于正常父母组(P<0.01);2)低功能孤独症组的父母生存质量评分明显低于高功能孤独症组(P<0.01);3)患儿家长的生存质量与患儿病情程度呈负相关,与智力水平呈正相关 (P<0.01)。 结论 孤独症儿童对患儿父母生存质量有影响,低功能孤独症患儿则影响更大。

关键词: 孤独症, 生存质量, 父母

Abstract: Objective To investigate the quality of life and related factors in parents of children with autism. Methods 90 parents of autistic children and 120 parents of normal children were participated.SF-36 was employed to evaluate both groups by questionnaire.Parents of autistic children also completed Clancy Autism Behavior Scale (CABS),Autistic Behavior Checklist (ABC),the Children Autistic Rating Scale (CARS)and Autistic children checked with the Gesell development diagnosis scale. Results 1)Parents of autistic children reported substantially lower scores of SF-36 than that of parents with normal group(P<0.01).2)The quality of life of parents in low functioning intelligence group was worse than high functioning intelligence group(P<0.01).3) The quality of life of parents was positively correlated with intelligence of autistic children,and negative correlated with symptom of autistic children. Conclusions Children with autistic disorder took grievous influence on parent's quality of life.Compared with high functioning intelligence group,the low functioning intelligence children's parents had even worse quality of life.

Key words: autistic, quality of life, parents

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