WHO-CST intervention for children with autism spectrum disorders aged 2 to 9 years in China

CHEN Biyuan, ZOU Xiaobing, KE Xiaoyan, LIANG Fengjing, XIAO Xiang, YOU Cong, CHEN Kaiyun, DENG Hongzhu

Chinese Journal of Child Health Care ›› 2023, Vol. 31 ›› Issue (8) : 913-919.

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Chinese Journal of Child Health Care ›› 2023, Vol. 31 ›› Issue (8) : 913-919. DOI: 10.11852/zgetbjzz2023-0033

WHO-CST intervention for children with autism spectrum disorders aged 2 to 9 years in China

  • CHEN Biyuan1, ZOU Xiaobing1, KE Xiaoyan2, LIANG Fengjing1, XIAO Xiang2, YOU Cong1, CHEN Kaiyun1, DENG Hongzhu1
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Abstract

Objective To explore the effectiveness and feasibility of the WHO Caregiver Skills Training (CST) program for children with autism spectrum disorder(ASD) within the domestic community healthcare framework. Methods This study is a randomized, parallel-controlled intervention trial using the WHO-CST program training and supervision framework through the pathway of "professional-nonprofessional-caregivers-children with ASD" to deliver evidence-based intervention strategies to caregivers of ASD children. The training is conducted and supervised by certified master trainers from the Third Affiliated Hospital of Sun Yat-Sen University and Nanjing Brain Hospital. Results The primary outcomes included target problem behavior management, engagement improvement and engagement severity changes and joint-engagement rating. Additionally,preliminary outcomes of overall child participation, ASD symptom severity measurement, caregiver knowledge and skills, parent's sense of competence, family empowerment, stigma, and caregiver coping skills in adverse events will be provided. Conclusions This study is the first large-sample randomized controlled trial (RCT) to implement CST for ASD children in mainland China. The effectiveness and feasibility data will be obtained to provide evidence for promoting CST implementation.

Key words

autism spectrum disorder / child care / caregivers / intervention study

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CHEN Biyuan, ZOU Xiaobing, KE Xiaoyan, LIANG Fengjing, XIAO Xiang, YOU Cong, CHEN Kaiyun, DENG Hongzhu. WHO-CST intervention for children with autism spectrum disorders aged 2 to 9 years in China[J]. Chinese Journal of Child Health Care. 2023, 31(8): 913-919 https://doi.org/10.11852/zgetbjzz2023-0033

References

[1] Lord C, Elsabbagh M, Baird G, et al. Autism spectrum disorder[J]. Lancet, 2018, 392 (10146):508-520.
[2] Rogge N, Janssen J. The economic costs of autism spectrum disorder: A literature review[J]. J Autism Dev Disord,2019,49(7):2873-2900.
[3] Mccall B. UK failing to meet the needs of people with autism[J]. Lancet,2017,389(10067):351.
[4] Bal VH, Kim S, Cheong D, et al. Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age[J]. Autism,2015,19(7):774-784.
[5] Olusanya BO, Davis AC, Wertlieb D, et al. Developmental disabilities among children younger than 5 years in 195 countries and territories, 1990—2016:A systematic analysis for the global burden of disease study 2016[J]. Lancet Glob Health,2018,6(10):e1100-e1121.
[6] Sun X, Allison C, Wei L, et al. Autism prevalence in china is comparable to western prevalence[J]. Mol Autism,2019,10:7.
[7] Dua T, Barbui C, Clark N, et al. Evidence-based guidelines for mental, neurological, and substance use disorders in low- and middle-income countries:Summary of WHO recommendations[J]. PLoS Med,2011,8(11):e1001122.
[8] Reichow B, Servili C, Yasamy MT, et al. Non-specialist psychosocial interventions for children and adolescents with intellectual disability or lower-functioning autism spectrum disorders: A systematic review[J]. PLoS Med,2013,10(12):e1001572.
[9] Salomone E, Pacione L, Shire S, et al. Development of the WHO caregiver skills training program for developmental disorders or delays[J]. Front Psychiatry,2019,10.
[10] Rahman A, Divan G, Hamdani SU, et al. Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS):A randomised controlled trial[J]. Lancet Psychiatry,2016,3(2):128-136.
[11] Daniels AM, Rosenberg RE, Anderson C, et al. Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry[J]. J Autism Dev Disord,2012,42(2):257-265.
[12] Kohrt BA, Jordans MJD, Rai S, et al. Therapist competence in global mental health: Development of the enhancing assessment of common therapeutic factors (ENACT) rating scale[J]. Behav Res Ther,2015,69:11-21.
[13] Murray LK, Dorsey S, Bolton P, et al. Building capacity in mental health interventions in low resource countries:An apprenticeship model for training local providers[J]. Int J Ment Health Syst,2011,5(1):30.
[14] Chow SC, Shao J, Wang H, et al. Sample size calculations in clinical research[M]. Florida:CRC press, 2017.
[15] Scahill L, Bearss K, Sarhangian R, et al. Using a patient-centered outcome measure to test methylphenidate versus placebo in children with autism spectrum disorder[J]. J Child Adolesc Psychopharmacol,2017,27(2):125-131.
[16] Arnold LE, Vitiello B, Mcdougle C, et al. Parent-defined target symptoms respond to risperidone in RUPP autism study:Customer approach to clinical trials[J]. J Am Acad Child Adolesc Psychiatry,2003,42(12):1443-1450.
[17] Mcconachie H, Parr JR, Glod M, et al. Systematic review of tools to measure outcomes for young children with autism spectrum disorder[J]. Health Technol Assess,2015,19(41):1-506.
[18] Adamson LB, Bakeman R, Deckner DF, et al. Rating parent-child interactions: Joint engagement, communication dynamics, and shared topics in autism, Down syndrome, and typical development[J]. J Autism Dev Disord,2012,42(12):2622-2635.
[19] Iadarola S, Levato L, Harrison B, et al. Teaching parents behavioral strategies for autism spectrum disorder (ASD):Effects on stress, strain, and competence[J]. J Autism Dev Disord,2018,48(4):1031-1040.
[20] Gilmore L, Cuskelly M. Factor structure of the parenting sense of competence scale using a normative sample[J]. Child Care Health Dev,2009,35(1):48-55.
[21] Geier DA, Kern JK, Geier MR. A comparison of the autism treatment evaluation checklist (ATEC) and the childhood autism rating scale (CARS) for the quantitative evaluation of autism[J]. J Ment Health Res Intellect Disabil,2013,6(4):255-267.
[22] Rimland B., Edelson S. Autism treatment evaluation checklist (ATEC)[J]. Autism Research Institute. 1999.
[23] Harrison AJ, Bradshaw LP, Naqvi NC, et al. Development and psychometric evaluation of the autism stigma and knowledge questionnaire (ASK-Q)[J]. J Autism Dev Disord,2017,47(10):3281-3295.
[24] Carver CS. You want to measure coping but your protocol's too long:Consider the brief COPE[J]. Int J Behav Med,1997,4(1):92-100.
[25] Bedell G. The Child and Adolescent Scale of Participation(CASP):Further psychometric testing[J]. J Head Trauma Rehabil, 2008,23(5):341.
[26] Koren PE, Dechillo N, Friesen BJ. Measuring empowerment in families whose children have emotional disabilities:A brief questionnaire[J]. Rehabil Psychol,1992,37(4):305.
[27] Weiss JA, Lunsky Y. The Brief Family Distress Scale:A measure of crisis in caregivers of individuals with autism spectrum disorders[J]. J Child Fam Stud,2011,20(4):521-528.
[28] Shevlin M, Adamson G. Alternative factor models and factorial invariance of the GHQ-12:A large sample analysis using confirmatory factor analysis[J]. Psychol Assess,2005,17(2):231-236.
[29] Reichow B, Kogan C, Barbui C, et al. Parent skills training for parents of children or adults with developmental disorders:Systematic review and meta-analysis protocol[J]. BMJ Open,2014,4(8):e5799.
[30] Tekola B, Girma F, Kinfe M, et al. Adapting and pre-testing the world health organization's caregiver skills training programme for autism and other developmental disorders in a very low-resource setting:Findings from Ethiopia[J]. Autism,2020,24(1):51-63.
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