Subjective quality of life of clinically cured children with Tourette syndrome

GUO Yi-xia, DING Lei, YI Ming-ji

Chinese Journal of Child Health Care ›› 2018, Vol. 26 ›› Issue (2) : 130-133.

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Chinese Journal of Child Health Care ›› 2018, Vol. 26 ›› Issue (2) : 130-133. DOI: 10.11852/zgetbjzz2018-26-02-05

Subjective quality of life of clinically cured children with Tourette syndrome

  • GUO Yi-xia1, DING Lei2, YI Ming-ji1
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Abstract

Objective To study the subjective quality of life in clinically cured children with Tourette syndrome (TS),and to provide evidence for the long-term intervention of TS. Methods TS group including 129 cases and control group including 129 children completed a general survey and Inventory of Subjective Life Quality (ISLQ),and the case group must finish another ISLQ after cured.Chi square test and T test were used to analyze the data by SPSS 20.0 statistical software. Results 1)Children of the two groups had significant differences on gender,birth weight,family type,feeding status of 4 months after born (P<0.05);The two groups did not have significant differences on age,family income,the father/mother's education level and children's parity (Pˇ0.05).2)The total score of the subjective quality of life in TS group were lower than that in control group (168.08±21.28 vs 155.67±20.51),and the difference was statistically significant (P<0.05).3)After the clinical rehabilitation,the total subjective quality of life,family life,school life and cognitive components were improved in the TS group with significant difference (P<0.05).4)Compared with control group,all aspects of subjective quality of life in clinically cured TS group were still lower,the difference was statistically significant (P<0.05). Conclusions The subjective quality of life in children with TS has improved,but the subjective quality of life in TS patients is still poor after cured compared with normal children.Therefore,consolidation therapy and more attention should be given for the cured TS children in order to improve subjective quality of life

Key words

Tourette syndrome / subjective quality of life / children

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GUO Yi-xia, DING Lei, YI Ming-ji. Subjective quality of life of clinically cured children with Tourette syndrome[J]. Chinese Journal of Child Health Care. 2018, 26(2): 130-133 https://doi.org/10.11852/zgetbjzz2018-26-02-05

References

[1] Reser JE.Tourette syndrome in the context of evolution and behavioral ecology[J].Med Hypotheses,2017,99:35-39.
[2] Murphy TK,Lewin AB,Storch EA,et al.Practice parameter for the assessment and treatment of children and adolescents with tic disorders[J].J Am Acad Child Adolesc Psychiatry,2013,52(12):1341-1359.
[3] Modafferi S,Stornelli M,Chiarotti F,et al.Sleep,anxiety and psychiatric symptoms in children with Tourette syndrome and tic disorders[J].Eur J Pediatr Neurol,2016,20(5):696-703.
[4] Gutierrez-Colina AM,LaMotte J,Eaton C,et al.The role of self-competence in health-related quality of life and behavioral functioning of children with Tourette Syndrome[J].J Dev Behav Pediatr,2015,36(9):743-751.
[5] Liu S,Zheng L,Zheng X,et al.The subjective quality of life in young people with Tourette syndrome in China[J].J Atten Disord,2017,21(5):426-432.
[6] American Psychiatric Association.Diagnostic and statistical manual of mental disorders,Fifth Edition (DSM-5)[M].Arlington:American Psychiatric Publishing,2013.
[7] Leckman JF,Riddle MA,Hardin MT,et al.The Yale Global Tic Severity Scale:initial testing of a clinician-rated scale of tic severity[J].J Am Acad Child Adolesc Psychiatry,1989,28(4):566-573.
[8] 杜亚松,李华芳,钟佑泉,等.可乐定透皮贴剂治疗抽动障碍的随机、双盲、安慰剂对照、多中心临床试验[J].上海精神医学,2006,48(4):193-198.
[9] 张艳,苏静,胡忠杰,等.阿立哌唑与盐酸硫必利治疗儿童抽动障碍的临床疗效与安全性对比[J].山东医药,2014,54(20):44-46.
[10] 程灶火,高北陵,彭建,等.儿少主观生活质量问卷的编制和信效度分析[J].中国临床心理学杂志,1998,6(1):11-16.
[11] Freeman RD,Fast DK,Burd L,et al.An international perspective on Tourette syndrome:selected findings from 3,500 individuals in 22 countries[J].Dev Med Child Neurol,2000,42(7):436-447.
[12] Robertson MM.The Gilles de la Tourette syndrome:the current status[J].Arch Dis Child Educ Pract Ed,2012,97(5):166-175.
[13] Chou IC,Tsai CH,Lee CC,et al.Association analysis between Tourette,s syndrome and dopamine D1 receptor gene in Taiwanese children[J].Psychiatr Genet,2004,14(4):219-221.
[14] Robertson M.A personal 35 year perspective on Gilles de la Tourette syndrome:assessment,investigations,and management[J].Lancet Psychiatry,2015,2(1):88-104.
[15] Ghosh D,Rajan PV,Das D,et al.Sleep disorders in children with Tourette syndrome[J].Pediatr Neurol,2014,51(1):31-35.
[16] HesapğIolu S,Tural M,Kandil S.Quality of life and self-esteem in children with chronic tic disorder[J].Turk Pediatri Ars,2014,49(4):323-332.
[17] Zinner SH,Conelea C,Glew G,et al.Peer victimization in youth with Tourette syndrome and other chronic tic disorders[J].Child Psychiatry Hum Dev,2012,43(1):124-136.
[18] Eapen V,rnec R,McPherson S,et al.Tic disorders and learning disability:clinical characteristics,cognitive performance and comorbidity[J].Australas J Spec Educ,2013,37(02):162-172.
[19] Rivera-Navarro J,Cubo E,Almazán J.The impact of Tourette's syndrome in the school and the family:perspectives from three stakeholder groups[J].Int J Adv Couns,2014,36(1):96-113.
[20] Mathews CA,Waller J,Glidden D,et al.Self injurious behaviour in Tourette syndrome:correlates with impulsivity and impulse control[J].Neurol Neurosurg Psychiatry,2004,75(8):1149-1155.
[21] 衣明纪,孙中运,冉霓.Tourette综合征儿童主观生活质量研究[J].中国当代儿童杂志,2011,13(9):732-735.
[22] 刘鑫.涤痰汤加减治疗儿童抽动障碍30例[D].北京:北京中医药大学,2008,12,28.
[23] 衣明纪.儿童抽动障碍的非药物治疗[J].中华实用儿科临床杂志,2016,31(23):1771-1777.
[24] Jalenques I,Auclair C,Morand D,et al.Health-related quality of life,anxiety and depression in parents of adolescents with Gilles de la Tourette syndrome:a controlled study[J].Eur Child Adolesc Psychiatry,2017,26(5):603-617.
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