目的 通过调查青岛地区1型糖尿病儿童及青少年血糖管理状况和生存质量,为儿童糖尿病的综合治疗提供依据。方法 采用儿童生存质量测定量表对2015年参加青岛大学附属医院内分泌儿科糖尿病营会活动的89名1型糖尿病儿童问卷调查,评价其血糖管理状况和生存质量。结果 1型糖尿病儿童糖化血红蛋白总体控制水平不良,血糖水平与年龄、病程、饮食、血糖监测频率、参加营会次数、居住地、母亲文化程度、家庭经济收入显著相关(P<0.05)。1型糖尿病儿童生存质量总得分是(80.73±12.68)分。血糖水平、居住地、父母婚姻状况、亲子交流情况是糖尿病儿童生存质量的相关因素(P<0.05),其中血糖水平是对生存质量发挥主导作用的因素。结论 青岛地区1型糖尿病儿童及青少年血糖控制水平总体欠佳,生存质量下降。医护人员需及早发现影响患儿血糖控制管理状况和生存质量的相关因素,积极干预,提高其血糖控制水平和生存质量。

Objective To investigate the glycemic control and quality of life in children and adolescents with type 1 diabetes of Qingdao and provide the dates for the treatment of children diabets influencing factors. Method sA total of 89 children and adolescents with type 1 diabetes who participated in Diabetes Summer 2015 Camp and Winter 2015 Camp held in Qingdao were recruited in the study.Pediatric Quality of Life Inventory Measurement Models (PedsQL40) was used to assess the quality of life and SPSS 17.0 was used for statistical analysis. Results The mean level of HbA1C of children and adolescents with type 1 diabetes was poor.Age,disease course,whether follow to the diabetes diet,the frequency of blood glucose testing and diabetes camp,place of residence,mothers' education level,family income were the influencing factors of HAb1C (P<0.05).The mean score of quality of life was 80.73±12.68.The level of blood glucose,place of residence,parents' current marital status,parenthood were influencing factors of quality of life of children and adolescents type 1 diabetes(P<0.05),in which the level of blood glucose was most important. Conclusions Children and adolescents with type 1 diabetes get a low quality of life by the growth of age and course of disease.The effects of their blood glucose control are unstable because they did not comply with the treatment and management of diabetes,especially settling in the countryside,low level of parents education,poor parenthood.In order to improve the quality of life,the integrated therapy should be performed on treating child and adolescents with type 1 diabetes.