目的 探讨社会支持体系对学龄期白血病患儿的情绪状态及其家长的心理健康和生活质量的影响。方法 采用前瞻性、病例-对照研究方法,通过心理调查问卷分析,分别调查白血病、非恶性血液系统疾病及健康学龄期儿童及其家长,比较社会支持干预前后白血病患儿的情绪及其家长心理状况和生活质量的变化。社会支持干预包括信息支持、经济支持、心理支持等方面。结果 1)白血病患儿较对照组儿童存在较多的负性情绪(P<0.05),经过社会支持干预后,其躯体化/惊恐、广泛性焦虑、学校恐惧和焦虑总分方面与正常对照组相比,差异无统计学意义(P>0.05),且主观心境好转。2)白血病组患儿家长的心理问题突出,表现在各因子得分均高于对照组(P<0.05);经过社会支持干预,人际关系敏感、敌对、恐怖、偏执方面有明显改善(P<0.05)。3)家长的心理问题与患儿的负性情绪存在正相关(P<0.05)。4)社会支持干预下,白血病患儿家长的生活质量总评提高,躯体、社会和心理维度均较无社会支持组家长有所改善(P<0.05)。结论 学龄期白血病患儿存在较多的负性情绪,其家长存在较多的心理问题,积极的社会支持系统有助于减少患儿的负性情绪及改善家长的心理健康,提高家庭的生活质量。
Abstract
Objective To explore the impact of social support system on emotion of children in school age with leukemia and their parents' psychological health. Methods With perspective case control study,psychological questionnaires were employed to investigate the emotional statuses of school-age health children and children with leukemia and non malignant hematological diseases,including their parents.After social support intervention which included informational support,economical support and psychological support,the emotional statuses of children with leukemia and life quality of their parents were compared between before and after social support intervention. Results 1)Children with leukemia suffered more negative emotions (P<0.05).Social support helped to reduce the negative emotion of children with leukemia,and improved their mood.2)The group of parents of children with leukemia suffered more psychological problems than the control groups (P<0.05).Social support also helped to reduce the psychological problems of the parents of children with leukemia.3)The severity of psychological problems in parents had a positive correlation with the negative emotion in children with leukemia.4)Social support also helped the parents of children with leukemia to improve the quality of life. Conclusions Children in school age with leukemia and their parents suffer lots of psychological problems.With progressive psychological intervention and the help of social support system,their psychological health and life quality can be reserved and improved.
关键词
社会支持 /
白血病 /
儿童 /
家长
Key words
social support /
leukemia /
children /
parents
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参考文献
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基金
福建省卫生厅青年科研课题基金(2012-2-37)
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