Abstract: Objective To construct a remote home rehabilitation model based on Internet technology, and to observe the effect of this rehabilitation model on motor function and functional independence of children with cerebral palsy (CP), in order to provide clinical evidence for home rehabilitation training of children with cerebral palsy. Methods A total of 65 children with cerebral palsy who had recovered from Xiangya Bo′ai Rehabilitation Hospital from June to November 2022 were selected into this study and were divided into remote intervention group (n=31) and conventional intervention group (n=34) according to the wishes of their caregivers.Children in conventional intervention group were given home rehabilitation training according to the home training program, while children in remote intervention group received an individualized remote home rehabilitation model, including remote rehabilitation training and quality control. Children in the two groups received intervention for 12 weeks with frequency of ≥1.5h/d, 5d/week. Gross Motor Function Measure (GMFM), Fine Motor Function Measure (FMFM), and Functional Independence Measure Children′s Edition (WeeFIM) were used to evaluate the gross motor function, fine motor function, and daily living ability of children before treatment and 12 weeks after treatment. Results After 12 weeks of treatment, the total satisfaction rate of the remote intervention group was 90.32%, significantly higher than that of the conventional intervention group (70.59%) (χ²=7.651, P<0.05). After 12 weeks of treatment, GMFM, FMFM and WeeFIM scores in the two groups were significantly improved compared with those before treatment (remote intervention group: t=16.736、36.772、18.858; conventional intervention group: t=7.354、18.495、8.895, P<0.05). The scores of the above indicators in the remote intervention group after 12 weeks of treatment were significantly higher than those in the conventional intervention group (t =2.014, 2.106, 2.137, P<0.05). Conclusion The remote home rehabilitation model based on Internet technology can effectively improve the gross motor function, fine motor function and daily living ability of children with cerebral palsy.

Key words: cerebral palsy, internet technology, remote home rehabilitation

摘要： 目的 构建一种基于互联网技术的远程家庭康复模式,并观察此康复模式对脑性瘫痪(脑瘫)儿童运动功能及功能独立性的影响,以期为脑瘫儿童家庭康复训练提供临床依据。方法 选取湘雅博爱康复医院2022年6—11月康复出院的65例脑瘫儿童为研究对象,按照照护人意愿分为远程组(31例)和常规组(34例)。常规组患儿按家庭训练方案予以家庭康复训练,远程组患儿则采用个性化远程家庭康复模式进行干预,远程家庭康复模式包括远程康复训练及质量控制。两组患儿训练时间不少于1.5h/d,5d/周,持续12周。于治疗前、治疗12周后采用粗大运动功能测试(GMFM)、精细运动功能测试(FMFM)、儿童功能独立性评定量表(WeeFIM)分别评估两组患儿的粗大运动功能、精细运动功能以及日常生活能力。结果 治疗12周后,远程组患儿总满意率(90.32%)高于常规组患儿(70.59%),差异具有统计学意义(χ²=7.651,P＜0.05);两组患儿治疗12周后GMFM、FMFM和WeeFIM评分较治疗前明显改善(t_远程组＝16.736、36.772、18.858,t_常规组＝7.354、18.495、8.895,P＜0.05);且远程组治疗12周后上述指标评分均显著高于治疗12周后的常规组(t＝2.014、2.106、2.137,P＜0.05)。结论 基于互联网技术的远程家庭康复模式能有效改善脑瘫儿童的粗大运动功能、精细运动功能及日常生活能力。

关键词: 脑性瘫痪, 互联网技术, 远程家庭康复