养育照护融合家庭干预模式用于孤独症谱系障碍的实践与展望

doi:10.11852/zgetbjzz2024-0682

中国儿童保健杂志 ›› 2024, Vol. 32 ›› Issue (9): 937-940.DOI: 10.11852/zgetbjzz2024-0682

养育照护融合家庭干预模式用于孤独症谱系障碍的实践与展望

李廷玉, 韦秋宏, 李燕, 魏华, 代英, 陈立

重庆医科大学附属儿童医院儿童保健科/国家儿童健康与疾病临床医学研究中心/儿童发育疾病研究教育部重点实验室/儿童神经发育与认知障碍重庆市重点实验室,重庆 400014

收稿日期:2024-06-12 修回日期:2024-07-01 发布日期:2024-09-02 出版日期:2024-09-10
作者简介:李廷玉(1956-),女,教授,博士生导师,主要研究方向为儿童营养与行为发育。
基金资助:
国家自然科学基金(81771223);广东省科技厅重点领域研发计划(2018B030335001);国家重点研发计划资助(2023YFC3604805)

Practice and prospects of integrating nurturing care and family interventions for autism spectrum disorder

LI Tingyu, WEI Qiuhong, LI Yan, WEI Hua, DAI Ying, CHEN Li

Department of Children's Healthcare, Children's Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Child Neurodevelopment and Cognitive Disorders, Chongqing 400014,China

Received:2024-06-12 Revised:2024-07-01 Online:2024-09-10 Published:2024-09-02

摘要/Abstract

摘要： 孤独症谱系障碍(ASD)是一种复杂的神经发育障碍,其患病率逐年增高,给家庭与社会带来了巨大负担。随着轻症及智力正常ASD儿童数量的增加,康复与干预领域迎来了新的发展机遇。在这种背景下,探讨如何提升家长的养育照护能力,以促进ASD儿童的康复,显得尤为重要。本文旨在介绍一种融合养育照护到家庭干预中的新模式,该模式特别适用于我国经济欠发达地区的ASD早期干预,并为全球资源有限的发展中地区提供了宝贵经验。

关键词: 孤独症谱系障碍, 家庭干预, 照顾者技能培训, 养育照护

Abstract: Autism spectrum disorder (ASD) is a complex neurodevelopmental disorder with increasing prevalence, posing significant challenges on families and society. As the number of children with mild symptoms and normal intellectual abilities rises, new opportunities for rehabilitation and intervention have emerged. In this context, it is crucial to explore ways to enhance parental caregiving skills to promote the recovery of ASD children. This editorial introduced a novel model that integrated caregiving into family-based interventions, particularly suited for early intervention in economically underdeveloped regions of China for children with ASD. Additionally, it provided valuable insights for resource-limited developing regions.

Key words: autism spectrum disorder, family intervention, caregiver skills training, nurturing care

中图分类号:

李廷玉, 韦秋宏, 李燕, 魏华, 代英, 陈立. 养育照护融合家庭干预模式用于孤独症谱系障碍的实践与展望[J]. 中国儿童保健杂志, 2024, 32(9): 937-940.

LI Tingyu, WEI Qiuhong, LI Yan, WEI Hua, DAI Ying, CHEN Li. Practice and prospects of integrating nurturing care and family interventions for autism spectrum disorder[J]. Chinese Journal of Child Health Care, 2024, 32(9): 937-940.

参考文献

[1] Lord C, Charman T, Havdahl A, et al. The lancet commission on the future of care and clinical research in autism[J]. Lancet, 2022,399(10321):271-334.
[2] WHO. Caregiver skills training for families of children with developmental delays or disabilities[EB/OL].[2022-04-27]. https://www.who.int/publications/i/item/9789240048836.
[3] 中华医学会儿科学分会发育行为学组, 中国医师协会儿科分会儿童保健学组. 中国低龄孤独症谱系障碍患儿家庭干预专家共识[J]. 中华儿科杂志, 2022,60(5):395-400.
The Subspecialty Group of Developmental and Behavioral Pediatrics, the Society of Pediatrics, Chinese Medical Association,the Subspecialty Group of Child Health Care, the Society of Pediatrics, Chinese Medical Doctor Association.Expert consensus on family intervention for young children with autism spectrum disorder in China[J]. Chin J Pediatr,2022,60(5):395-400.
[4] Salomone E, Settanni M, McConachie H, et al. Pilot randomized controlled trial of the WHO caregiver skills training in public health services in Italy[J]. Autism Dev Disord, 2022,52(10):4286-4300.
[5] Sengupta K, Shah H, Ghosh S, et al. World Health Organisation-caregiver skills training (WHO-CST) program:Feasibility of delivery by non-specialist providers in real-world urban Settings in India[J]. J Autism Dev Disord, 2023,53(4):1444-1461.
[6] Tekola B, Girma F, Kinfe M, et al. Adapting and pretesting the World Health Organization's caregiver skills training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia[J]. Autism, 2020,24(1):51-63.
[7] Salomone E, Pacione L, Shire S, et al. Development of the WHO caregiver skills training program for developmental disorders or delays[J].Front Psychiatry, 2019(10):769.
[8] WHO. Nurturing care for early childhood development[EB/OL]. (2024-05-20)[2024/5/20].https://www.who.int/publications/i/item/9789241514064.
[9] Wei Q, Xiao Y, Yang T, et al. Predicting autism spectrum disorder using maternal risk factors: A multi-center machine learning study[J]. Psychiatry Res, 2024,334:115789.
[10] 艾女湉, 张倩, 杨亭, 等. 孤独症谱系障碍儿童严重挑食与核心症状的关联[J]. 中国儿童保健杂志, 2022,30(4):355-360.
Ai NT,Zhang Q,Yang T,et al. Association between picky eating and core symptoms in children with autism spectrum disorder[J].Chin J Child Health Care,2022,30(4):355-360.
[11] Cheng B, Zhu J, Yang T, et al. Vitamin A deficiency increases the risk of gastrointestinal comorbidity and exacerbates core symptoms in children with autism spectrum disorder[J]. Pediatr Res, 2021,89(1):211-216.
[12] Yang T, Zhang Q, Chen L, et al. Intestinal symptoms among children aged 2-7 years with autism spectrum disorder in 13 cities of China[J].J Autism Dev Disord, 2023.doi:10.1007/s10803-023-06122-3.
[13] UNICEF. 联合国儿童基金会[EB/OL]. (2024-04-26). https://www.unicef.org/zh.
[14] Ge D, Wei H, Wang Y, et al. Effectiveness of caregiver-mediated intervention: A pilot study for children with neurodevelopmental disorders[J].Prim Health Care Res Dev, 2022,23:e63.doi:10.1017/S1463423622000524.
[15] Wei H, Li Y, Zhang Y, et al. Awareness and knowledge of autism spectrum disorder in Western China: Promoting early identification and intervention[J]. Front Psychiatry, 2022,13:970611.

养育照护融合家庭干预模式用于孤独症谱系障碍的实践与展望

Practice and prospects of integrating nurturing care and family interventions for autism spectrum disorder

PDF

可视化

摘要/Abstract

引用本文

使用本文

参考文献

相关文章 15

编辑推荐

Metrics

[1]	静进. 孤独症谱系障碍“神经多样性”的观点及其评价[J]. 中国儿童保健杂志, 2024, 32(7): 709-712.
[2]	丛妍, 王浩, 王栋, 俞露婷, 朱晓春. 婴儿期运动发育指标在孤独症谱系障碍儿童筛查中的应用[J]. 中国儿童保健杂志, 2024, 32(7): 752-756.
[3]	张蓓, 王敏囡, 尼罗帕, 古丽加娜提·阿布拉克木, 克日曼·帕尔哈提, 何艳红, 阿曼古丽·卡德尔, 热娜·买买提. 产后早期免疫激活对小鼠孤独症样行为和胶质细胞的影响[J]. 中国儿童保健杂志, 2024, 32(4): 405-411.
[4]	杨峰. 从言语病理学角度看孤独症谱系障碍儿童的沟通障碍[J]. 中国儿童保健杂志, 2024, 32(3): 233-236.
[5]	王峰, 刘泽慧, 张艺霖, 田文茹, 杨凌渊, 邹明扬, 孙彩虹. 孤独症谱系障碍儿童外周血CNR1基因甲基化修饰水平的研究[J]. 中国儿童保健杂志, 2024, 32(3): 237-241.
[6]	侯耀奇, 宋湘勤. 运动干预改善孤独症谱系障碍儿童社会功能的研究进展[J]. 中国儿童保健杂志, 2024, 32(3): 291-295.
[7]	徐敏, 单延春, 冉霓, 杨召川, 衣明纪. 亲子同床睡眠的现状以及对儿童健康的影响[J]. 中国儿童保健杂志, 2024, 32(3): 312-316.
[8]	邹红, 朱健芳, 罗佳怡, 李丹丹, 吴迪. 孤独症谱系障碍的干预方法及发展趋势[J]. 中国儿童保健杂志, 2024, 32(3): 317-321.
[9]	蔚然, 孔锐, 关陆阳, 王永露, 叶侃. 益生菌对孤独谱系障碍患者核心症状干预效果的荟萃分析[J]. 中国儿童保健杂志, 2024, 32(3): 322-328.
[10]	胥柯, 周勤, 吴明磊, 宋丽, 柯晓燕. 孤独症谱系障碍儿童的饮食睡眠问题及相关因素[J]. 中国儿童保健杂志, 2024, 32(3): 329-333.
[11]	童梅玲. 婴幼儿养育照护中早期学习机会的创设[J]. 中国儿童保健杂志, 2024, 32(2): 117-121.
[12]	干凯滟, 黄安琪, 张子一, 关陆阳, 王菲, 柯晓燕. M-CHAT筛查阳性对孤独症谱系障碍早期诊断稳定性的前瞻性研究[J]. 中国儿童保健杂志, 2024, 32(10): 1076-1079.
[13]	杨帆, 李庆红, 李翌鸣, 杨顺波, 李威, 吕智海. 孤独症谱系障碍儿童屏幕使用现状及其与核心症状的相关性[J]. 中国儿童保健杂志, 2024, 32(10): 1080-1084.
[14]	静进. 孤独症谱系障碍的治疗干预现状与建议[J]. 中国儿童保健杂志, 2023, 31(9): 939-944.
[15]	李亦诚, 张媛媛, 霍言言, 吴丹, 马玲, 仇晓艳, 马晨欢, 王健, 罗洁鸣, 李天舒, 徐敬, 周洁, 孙婷婷, 沈红英, 徐蕾, 王瑜, 陈津津. 应用移动端开展孤独症谱系障碍居家早期筛查的初步研究[J]. 中国儿童保健杂志, 2023, 31(9): 963-968.