哮喘儿童对其主要照顾者及家庭的影响研究

中国儿童保健杂志 ›› 2011, Vol. 19 ›› Issue (9): 850-853.

哮喘儿童对其主要照顾者及家庭的影响研究

张映芬¹,郝元涛²,冯丽芬²,陈若青³

1 中山大学附属第一医院,广东广州 510080;
2 中山大学公共卫生学院,广东广州 510080;
3 复旦大学公共卫生学院,上海 200032

收稿日期:2011-05-17 发布日期:2011-09-06 出版日期:2011-09-06
通讯作者: 郝元涛, E-mail:haoyt@mail.sysu.edu.cn
作者简介:张映芬(1972-),女 ,广东人, 副主任护师,硕士学位,主要研究方向为与健康相关生存质量测量方法及应用

Study the impact of asthmatic children′s attendants and family

ZHANG Ying-fen¹, HAO Yuan-tao², FENG Li-fen², CHEN Ruo-qing³

1 The First Affiliated Hospital, SUN Yat-sen University, Guangzhou, Guangdong 510080,China;
2 School of Public Health,SUN Yat-sen University,Guangzhou, Guangdong 510080, China;
3 School of Public Health, Fudan University, Shanghai 200032, China

Received:2011-05-17 Online:2011-09-06 Published:2011-09-06

摘要/Abstract

摘要： 【目的】探索哮喘儿童对其主要照顾者及其家庭的影响,为临床干预和健康教育提供理论依据。【方法】运用儿童生存质量量表体系(PedsQLTM)的家庭影响模块对哮喘儿童主要照顾者进行问卷调查,运用协方差分析方法分析不同病情、不同病程、不同家庭经济状况的患病儿童对家庭主要照顾者的生存质量和家庭功能得分的影响。【结果】父母生存质量评分中以忧虑维度得分最低,为70分;家庭功能评分中以家庭日常活动得分最低,为66.67分。60%以上的被调查者均表示哮喘儿童对父母的工作和家庭日常生活都带来一定程度的影响。不同病情、病程患儿对家庭的影响差异无统计学意义(P＞0.05),不同家庭经济状况患儿对家庭影响差异有统计学意义(P＜0.05)。【结论】哮喘儿童对其主要照顾者和家庭都带来一定程度的影响。在对哮喘儿童进行治疗时,应重视对家长的心理帮助与支持,结合病情作好解释工作,减轻家长心理负担,树立信心配合治疗,使哮喘病情得到有效的控制,最终提高患儿及其父母的生存质量。

关键词: 支气管哮喘儿童, 生存质量, 疾病家庭影响, 疾病负担

Abstract: 【Objective】 To explore the impact of asthmatic children′s attendants and family, and give theoretic basics of clinical treatment and health education. 【Methods】 Asthmatic Children′s main attendants completed the PedsQLTM family Impact Module. Analysis of covariance analysis was used to analyze parents′ QOL of asthmatic children of different conditions, course, or economic situation. 【Results】 The score of anxiety dimension was the lest in parents′ quality of life scores which was 70; the score of daily household activities was the lest in family function scores which was 66.67. More than 60% of respondents indicated a certain degree of impact was exist at asthmatic children's parents work and family life. No significant difference of family impact was found in different disease and course of disease(P>0.05). The difference of family impact of different economic situation with sick children was found(P<0.05). 【Conclusions】 A certain degree of impact is exist at asthmatic children′s attendants and family. Attention should be paid to psychological help and support of parents when curing asthmatic children, combine with conditions to do interpretation well, reduce the psychological burden of parents, establish confidence with the treatment, effectively control asthma conditions, ultimately improve the life's quality of children and their parents.

Key words: bronchial asthmatic children, quality of life, family influence of disease, disease burden

中图分类号:

R725.6

张映芬,郝元涛,冯丽芬,陈若青. 哮喘儿童对其主要照顾者及家庭的影响研究[J]. 中国儿童保健杂志, 2011, 19(9): 850-853.

ZHANG Ying-fen, HAO Yuan-tao, FENG Li-fen, CHEN Ruo-qing. Study the impact of asthmatic children′s attendants and family[J]. journal1, 2011, 19(9): 850-853.

参考文献

[1] Vila G, Hayder R, Bertrand C,et al. Psychopathology and Quality of Life for Adolescents With Asthma and Their Parents[J]. Psychosomatics 2003,44(8):319-328.
[2] 张欣,陈京立.慢性病患儿对家庭的影响及护理干预[J].中华护理杂志,2006,41(8):749-751.
[3] Ana CS, Saul MP, Isabela AP, et al.The Pediatric Quality of Life InventoryTM (PedsQLTM) family impact module: reliability and validity of the Brazilian version[J]. Health and Quality of Life Outcomes, 2008, 6:35-39.
[4] 全国儿科哮喘防治协作组.儿童哮喘防治常规(试行) [J] .中华儿科杂志, 1998, 36(12): 747-750.
[5] Varni JW,Seid M,Knight TS,et al.The PedsQLTM4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making [J].Journal of Behavioral Medicine,2002,25:175-193.
[6] Varni JW, Sherman SA, Burwinkle TM, et al. The PedsQL^TM Family Impact Module: preliminary reliability and validity[J].Health and Quality of Life Outcomes, 2004, 2:55-59.
[7] Chen RQ, Hao YT, Feng LF,et al. The Chinese version of the Pediatric Quality of Life Inventory^TM (PedsQL^TM) Family Impact Module: cross-cultural adaptation and psychometric evaluation[J].Health and Quality of Life Outcomes,2011,9:16-19.
[8] Pillow DR, Zautra AJ, Sandler I. Major life events and minor stressors:identifying mediational links in the stress process[J]. J Pers Soc Psychol(UNITED STATES), 1996,70(2):381-394.
[9] 李慧,李新兰,高文凤.哮喘患儿父母心理健康状况的比较研究[J].中国行为医学科学,2003,12(4):451-455.
[10] 陈淑芬.家庭功能分析的理论体系简介-家庭功能分析的相关概念[J].中国全科医学, 2006, 9(2): 167-169.
[11] Thompson SJ, Auslander WF, White NH. Comparison of single-mother and two-parent families on metabolic control
of children with diabetes[J]. Diabetes Care, 2001, 24(2):234-238.

[1]	陈顺, 林雪梅, 袁乔英, 刘芳, 肖曙芳, 乐小婧, 张曼, 李仙. 1990—2019年中国儿童青少年1型糖尿病负担分析与模型预测[J]. 中国儿童保健杂志, 2024, 32(7): 746-751.
[2]	鲍成臻, 高丽丽, 韩历丽. 北京市青少年生存质量现状与健康认知和健康行为的关系[J]. 中国儿童保健杂志, 2024, 32(6): 687-691.
[3]	朱丽君, 李彪章, 周嘉雯, 吴柏欣, 李卫东. 1990—2019年中国5岁以下儿童低体重疾病负担分析[J]. 中国儿童保健杂志, 2023, 31(7): 790-793.
[4]	刘维韦, 娄海琴, 付路, 代倩倩. 学龄前超重肥胖儿童生存质量现状及影响因素分析[J]. 中国儿童保健杂志, 2023, 31(4): 385-389.
[5]	张雪怡, 张亚昱, 李佳. 微塑料对新生儿健康影响的研究[J]. 中国儿童保健杂志, 2023, 31(4): 399-403.
[6]	胡黎舒, 魏兵, 廖世峨, 周楠, 齐双辉, 张旭, 方敏华. 先天性心脏病患儿术后合并营养不良影响因素及其生存质量分析[J]. 中国儿童保健杂志, 2021, 29(8): 824-828.
[7]	余丽蓉, 杜香平, 吴限, 袁意, 杨玉, 余珍. 先天性肾上腺皮质增生症儿童及青少年的生存质量及其影响因素[J]. 中国儿童保健杂志, 2021, 29(8): 843-847.
[8]	王婷婷, 叶秀霞, 陈伟敏, 和永瑞, 秦荣, 洪海筏. 功能性单心室患儿的健康相关生存质量评估[J]. 中国儿童保健杂志, 2021, 29(5): 492-496.
[9]	王文, 陈丹丹, 张新卉. 留守儿童生存质量与心理健康的相关性及影响因素分析[J]. 中国儿童保健杂志, 2021, 29(11): 1245-1248.
[10]	林丽娜, 李倩婷, 林娟, 江平湖, 黄宏. 1型糖尿病患儿父亲参与教养的现状及其与患儿生存质量的相关性分析[J]. 中国儿童保健杂志, 2020, 28(1): 104-107.
[11]	缪艳霞, 王芳, 乔良美, 刘怡欣, 常黎华. 学龄期1型糖尿病儿童生存质量差异的因素分析[J]. 中国儿童保健杂志, 2019, 27(5): 551-554.
[12]	宋海晓, 董肖萍, 陈志红, 衣明纪, 李堂, 刘静. 青岛地区1型糖尿病儿童及青少年血糖管理状况和生存质量的调查研究[J]. 中国儿童保健杂志, 2017, 25(5): 459-462.
[13]	刘振寰,董尚胜. 脑性瘫痪伴痉挛痛患儿的生存质量调查研究[J]. 中国儿童保健杂志, 2015, 23(8): 862-864.
[14]	鲁玉姣,钟燕,周小渔,康如彤,朱莎. 先天性肛门直肠畸形儿童生存质量的研究[J]. 中国儿童保健杂志, 2015, 23(10): 1080-1083.
[15]	梁秋叶,覃花桃. 健康指导与家庭康复相结合提高脑瘫儿童疗效及生存质量的研究[J]. 中国儿童保健杂志, 2015, 23(10): 1114-1116.